The Independent London Newspaper
27th February 2017

MP takes up case of patient crowd-funding for cancer drug that NHS won't pay for

    Momenul Haque

    Published: 27 July, 2016
    By TOM FOOT

    THE health secretary has been alerted to the “extremely serious” plight of a young man with terminal cancer whose hospital consultant has recommended a treatment that the NHS will not pay for. 

    Labour MP Sir Keir Starmer has written to Jeremy Hunt about Momenul Haque, who lives in the Ampthill Estate near Mornington Crescent, asking for him to make “urgent enquiries about this case”. 

    Mr Haque, 33, has raised more than £120,000 of the £200,000 he needs to complete his pembrolizumab (Keytruda) treatment. Mr Starmer is holding a special fund-raising event for him in September. 

    Sir Keir wrote: “As I am sure you are aware, pembrolizumab has shown encouraging results in treating cancers that – as in Mr Haque’s case – cannot be removed with surgery.

    “His UCLH consultant has also stated that there is a moderate to high likelihood Mr Haque would respond positively to treatment.” 

    The New Journal featured Mr Haque’s plight two months ago when he said he felt as if his life was no longer “priceless”.

    He is keeping his supporters updated with regular posts online. In one, he said: “I may put on a brave face and appear to be positive, but I go through the fear, the sadness, and the despair, which are oft-times overwhelming, bringing me down to my knees – literally.”

    Mr Haque has been attending community centres and mosques daily, raising money for his own treatment after he was told that the NHS, or the Cancer Drug Fund, will not pay for it. 

    Pembrolizumab – also known as keytruda – is a type of immunotherapy that stimulates the body’s immune system to fight cancer cells.

    The NHS decision not to fund it is believed to be a “cohort decision”, which is when a drug is not recommended by the NHS in case it would lead to many other people demanding the same.

    Mr Starmer, who was elected MP for Holborn and St Pancras in May last year. In his letter to Mr Hunt, Mr Starmer added: “The result is that Mr Haque is now in the invidious position of raising money for himself to pay for this treatment. At an estimated £6,500 every three weeks, this is putting huge financial and emotional strain on Mr Haque.”

    Mr Starmer said he had been struck my Mr Haque’s “courage and dedication” adding: “I am sure you will agree that this is profoundly regrettable and unacceptable that anyone should have to fund potentially life-saving treatment in this way.” 

    Mr Starmer has received a letter from Mr Haque’s oncologist, Professor John Bridgwater, confirming that UCLH has had an “individual funding request” for another patient for the treatment denied, and “consequently a new funding request has not been submitted” for Mr Haque. The letter added that it had been made clear that “UCLH should not submit another application for this treatment”.

    The drug is “licensed” for NHS patients with melanoma cancers but not for colorectal cancer, like Mr Haque, despite it being approved by the FDA in the US. It was on the back of America’s approval of the drug, and new research showing its benefits, that Professor Bridgwater made the application. 

    NHS England said: “We have looked into this one and pembrolizumab does not currently have a UK licence for the treatment of colorectal cancer and we have no record of an individual funding request.”

    On Sunday, Mr Haque ran a stall at the annual Camden Mela in Coram’s Fields, where he raised £725.15. He said his first sessions of the drug had caused “a lot of pain”, but that his “energy was up and his pain has eased, and I’m sleeping a lot better – which are all good signs”. 

    For more information about Mr Haque’s fund-raising efforts, visit https://crowdfunding.justgiving.com/keepinghope 

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